Hellenic Cystic Fibrosis Association (H.C.F.A.) is one of the oldest Greek patient associations in Greece, established at 1983 by parents of children suffering from Cystic Fibrosis (CF). The association is non-profit, is based in Athens and is a member and representative of Greece in the international organisations Cystic Fibrosis Worldwide (CFW), Cystic Fibrosis Europe (CFE), Eurordis (Rare Diseases Europe), ERS (European Respiratory Society), ELF (European Lung Foundation), European Transplant Patient Organizations (ESOT-ETPO). During its 39 years history, HCFA has managed to change Cystic Fibrosis in Greece, bringing together CF patients all over Greece and medical professionals, improving the quality of life for patients, promoting high quality research, education and care and raising public awareness.
The objectives of HCFA are:
a) To defend in any legal way the rights of people suffering from Cystic Fibrosis in Greece.
b) To create the necessary conditions in hospitals, where patients with Cystic Fibrosis are monitored.
c) To answer any issues arising concerning the hospitalisation of patients, treatments, transplantations and social benefits that they are entitled to.
d) To inform the public about disease’s prevention and treatments and the nature of the disease.
e) To organise conferences, meetings, cultural events through its online platform on Cystic Fibrosis.
e) To participate in national and international Cystic Fibrosis conferences, representing Greece in international partnerships.
HCFA BOARD OF DIRECTORS 2022
The Board of Directors of the Hellenic Cystic Fibrosis Association (HCFA) consists exclusively of Cystic Fibrosis (CF) patients and parents of CF children, monitored in different CF Centers all over Greece, in order to have nationwide representation of CF patients all over the country ensuring a united and multilateral representation of Greek CF patients.
The BOD is in close collaboration with all specialized CF physicians treating patients throughout Greece, who form HCFA’s Scientific Committee, established in 2013 for providing expert scientific advice to HCFA.
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Hellenic Cystic Fibrosis Association
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Name
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BOD Position |
Status |
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Anna Spinou |
President |
CF Patient- “Sismanoglio” Hospital in Athens |
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Irene Katsini |
Vice president |
CF Patient- “Sismanoglio” Hospital in Athens |
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Konstantina Giannaki |
General Secretary |
Parent- “Paidon-Agia Sofia” Children’s Hospital in Athens |
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Konstantina Proga |
Treasurer |
Parent- “Paidon-Agia Sofia” Children’s Hospital in Athens |
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Maria Paliou |
Deputy Secretary |
CF Patient- “Sismanoglio” Hospital in Athens |
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Christos Mpakodimos |
Deputy Treasurer |
Parent- “Paidon-Agia Sofia” Children’s Hospital in Athens |
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Sotiria Tzonou-Moutsiou |
Member |
Parent- “Hippokratio” Children’s Hospital in Thessaloniki |
Deputy Board Members of HCFA
Eleni Papavasilopoulou (CF Patient- Sismanoglio)
Ioannis Spinos (CF patient- Sismanoglio)
Alexandros Papadopoulos (Parent- Hippokratio Thessaloniki)
OUR SCIENTIFIC COMMITTEE
The HCFA is in close collaboration with all the physicians of cystic fibrosis treating patients throughout Greece. These physicians form our scientific committee, established in 2013 and they provide expert scientific advice to HCFA.
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Hellenic Cystic Fibrosis Association
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Name
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Position |
Hospital |
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Ilias Igglezos |
CF Pulmonologist |
Hospital “Sismanogleio” in Athens |
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Filia Diamantea |
CF Pulmonologist |
“Hospital “Sismanogleio” in Athens |
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Konstantinos Kotsifas |
Pulmologist (CF Scholarship) |
Hospital “Sismanogleio” in Athens |
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Stavros Doudounakis |
CF Pediatrician/ Head of CF Center |
Aghia Sophia Children’s Hospital |
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Ioanna Loukou |
CF Pediatrician |
Aghia Sophia Children’s Hospital |
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Argyri Petrochilou |
CF Pediatric Pulmonologist |
Aghia Sophia Children’s Hospital |
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Athanasios Kaditis |
CF Pediatric Pulmonologist |
Aghia Sophia Children’s Hospital |
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Anna Katelari-Ioannidou |
Pediatrician (CF Contributer) |
Aghia Sophia Children’s Hospital |
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Kontantinos Priftis |
Assistant Professor of Pediatrics and Pulmonology |
Attikon University Hospital |
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Kontantinos Douros |
CF Pediatric pulmonologist |
Attikon University Hospital |
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Ioannis Kioumis |
Associate Professor in Pulmonology and Infectious Diseases CF Pulmonologist |
G. Papanikolaou Hospital |
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Ioannis Tsanakas |
Professor of Pediatrics Pulmonology CF Pediatric Pulmonologist |
Hippokration Hospital of Thessaloniki |
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Elpis Hatziagorou |
Lecturer of Respiratory Paediatrics CF Pediatric Pulmonologist |
Hippokration Hospital of Thessaloniki |
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Maria Fotoulaki |
CF Pediatric Gastroenterology |
Papageorgiou Hospital of Thessaloniki |
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Michael Anthrakopoulos |
Professor of Pediatrics Pulmonology CF Pediatric Pulmonologist |
General University Hospital of Patras |
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Penelope Paspalaki |
CF Pediatrician |
University Hospital of Heraklion |
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Emmanuel kanavakis |
Ex-professor-Supervisor of Medical Genetics Laboratory |
Aghia Sophia Children’s Hospital |
Contact info
Address: “Impact Hub Athens”, Karaiskaki 28, Athens, Greece, zip code: 10554
Email: cysticfibrosis.gr@gmail.com
Website: www.cysticfibrosis.gr
tel.: 00306944255853 (Mon-Fri, 11.00-15.00)