Hellenic CF Association (Athens)

Hellenic CF Association (Athens) HCFA TEAM 13 Απριλίου, 2015

Hellenic CF Association (Athens)

Hellenic Cystic Fibrosis Association (H.C.F.A.) is one of the oldest Greek patient associations in Greece, established at 1983 by parents of children suffering from Cystic Fibrosis (CF). The association is non-profit, is based in Athens and is a member and representative of Greece in the international organisations Cystic Fibrosis Worldwide (CFW), Cystic Fibrosis Europe (CFE), Eurordis (Rare Diseases Europe), ERS (European Respiratory Society), ELF (European Lung Foundation), European Transplant Patient Organizations (ESOT-ETPO). During its 39 years history, HCFA has managed to change Cystic Fibrosis in Greece, bringing together CF patients all over Greece and medical professionals, improving the quality of life for patients, promoting high quality research, education and care and raising public awareness.

 

The objectives of HCFA are:

a) To defend in any legal way the rights of people suffering from Cystic Fibrosis in Greece.

b) To create the necessary conditions in hospitals, where patients with Cystic Fibrosis are monitored.

c) To answer any issues arising concerning the hospitalisation of patients, treatments, transplantations and social benefits that they are entitled to.

d) To inform the public about disease’s prevention and treatments and the nature of the disease.

e) To organise conferences, meetings, cultural events through its online platform on Cystic Fibrosis.

e) To participate in national and international Cystic Fibrosis conferences, representing Greece in international partnerships.

 

 

HCFA BOARD OF DIRECTORS 2022

 

The Board of Directors of the Hellenic Cystic Fibrosis Association (HCFA) consists exclusively of Cystic Fibrosis (CF) patients and parents of CF children, monitored in different CF Centers all over Greece, in order to have nationwide representation of CF patients all over the country ensuring a united and multilateral representation of Greek CF patients.

The BOD is in close collaboration with all specialized CF physicians treating patients throughout Greece, who form HCFA’s Scientific Committee, established in 2013 for providing expert scientific advice to HCFA.

 

Hellenic Cystic Fibrosis Association

 

Name

 

BOD Position

Status

Anna Spinou

President

CF Patient- “Sismanoglio” Hospital in Athens

Irene Katsini

Vice president

CF Patient- “Sismanoglio” Hospital in Athens

Konstantina Giannaki

General Secretary

Parent- “Paidon-Agia Sofia” Children’s Hospital in Athens

Konstantina Proga

Treasurer

Parent- “Paidon-Agia Sofia” Children’s Hospital in Athens

Maria Paliou

Deputy Secretary

CF Patient- “Sismanoglio” Hospital in Athens

Christos Mpakodimos

Deputy Treasurer

Parent- “Paidon-Agia Sofia” Children’s Hospital in Athens

Sotiria Tzonou-Moutsiou

Member

Parent- “Hippokratio” Children’s Hospital in Thessaloniki

 

Deputy Board Members of HCFA

Eleni Papavasilopoulou (CF Patient- Sismanoglio)

Ioannis Spinos (CF patient- Sismanoglio)

Alexandros Papadopoulos (Parent- Hippokratio Thessaloniki)

 

 

OUR SCIENTIFIC COMMITTEE

 

The HCFA is in close collaboration with all the physicians of cystic fibrosis treating patients throughout Greece. These physicians form our scientific committee, established in 2013 and they provide expert scientific advice to HCFA.

 

Hellenic Cystic Fibrosis Association

 

Name

 

Position

Hospital

Ilias Igglezos

CF Pulmonologist

Hospital “Sismanogleio” in Athens

Filia Diamantea

CF Pulmonologist

“Hospital “Sismanogleio” in Athens

Konstantinos Kotsifas

Pulmologist (CF Scholarship)

Hospital “Sismanogleio” in Athens

Stavros Doudounakis

CF Pediatrician/ Head of CF Center

Aghia Sophia Children’s Hospital

Ioanna Loukou

CF Pediatrician

Aghia Sophia Children’s Hospital

Argyri Petrochilou

CF Pediatric Pulmonologist

Aghia Sophia Children’s Hospital

Athanasios Kaditis

CF Pediatric Pulmonologist

Aghia Sophia Children’s Hospital

Anna Katelari-Ioannidou

Pediatrician (CF Contributer)

Aghia Sophia Children’s Hospital

Kontantinos Priftis

Assistant Professor of Pediatrics and Pulmonology

Attikon University Hospital

Kontantinos Douros

CF Pediatric pulmonologist

Attikon University Hospital

Ioannis Kioumis

Associate Professor in Pulmonology and Infectious Diseases

CF Pulmonologist

G. Papanikolaou Hospital

Ioannis Tsanakas

Professor of Pediatrics Pulmonology

CF Pediatric Pulmonologist

Hippokration Hospital of Thessaloniki

Elpis Hatziagorou

Lecturer of Respiratory Paediatrics

CF Pediatric Pulmonologist

Hippokration Hospital of Thessaloniki

Maria Fotoulaki

CF Pediatric Gastroenterology

Papageorgiou Hospital of Thessaloniki

Michael Anthrakopoulos

Professor of Pediatrics Pulmonology

CF Pediatric Pulmonologist

General University Hospital of Patras

Penelope Paspalaki

CF Pediatrician

University Hospital of Heraklion

Emmanuel kanavakis

Ex-professor-Supervisor of Medical Genetics Laboratory

Aghia Sophia Children’s Hospital

 

Contact info
Address: “Impact Hub Athens”, Karaiskaki 28, Athens, Greece, zip code: 10554
Email:         cysticfibrosis.gr@gmail.com
Website:     www.cysticfibrosis.gr

tel.:          00306944255853 (Mon-Fri, 11.00-15.00)