The President of the Hellenic Cystic Fibrosis Association, Anna Spinou, participated in the 1st Board of the European Rare Diseases Organization Eurordis-Rare Diseases Europe, representing in Europe the patients with rare diseases of our country after her election as a new Board Member of Eurordis.
The meetings took place on 7-8 July at Eurordis headquarters in Paris, where representatives of rare disease patients from various European countries participated. The meetings discussed important issues related to the functioning of the organisation, as well as actions and next steps towards a better future for rare disease patients across Europe.
With the participation of our President in the Board of EURORDIS, Greece enters the centre of the demands for rare patients in Europe, claiming that no rare patient should be left behind.
See all Board Members of Eurordis here.