A week dedicated to informing and raising awareness about the most common hereditary disease with more than 80,000 patients in Europe.
Did you know that?
- In Greece, the number of cystic fibrosis carriers exceeds half a million.
- For a child to be born with Cystic Fibrosis both parents must be be carriers of the disease.
- In the past, the survival rate of patients was very low, but innovative treatments are now changing their lives and increasing their life expectancy.
- H lung transplantation is the only life-saving solution for patients with end-stage respiratory failure.
“Cystic fibrosis is an “invisible” but extremely important disease that affects the lives of thousands of people. The importance of awareness, prevention and early diagnosis is crucial. European Cystic Fibrosis Week focuses on providing accurate information, empowering the voice of patients and supporting research to develop new treatments. Through information activities, awareness events and partnerships, the Panhellenic Cystic Fibrosis Association informs society and strengthens support for the Cystic Fibrosis community to live a life with Breathless Breath”, says the Anna Spinou, President of the Panhellenic Cystic Fibrosis Association. As part of the European Cystic Fibrosis Week, the Panhellenic Cystic Fibrosis Association is organizing the annual Annual Hybrid Conference, entitled: “Discovering the Path to Unlimited Breath”, with speakers, renowned scientists and health professionals who will inform about Cystic Fibrosis and lung transplantation. The conference will take place on Sunday, December 1, 2024, at 9:30 a.m., at The Stanley Hotel Athens, with live streaming in Greek and English.
The conference is open to patients, caregivers, health professionals and the general public, with free admission. During the event, the new book “Nutrition for Children with Cystic Fibrosis” by paediatrician Anastasia Gambetta will be distributed free of charge to patients and healthcare professionals, enhancing knowledge and support for the management of the disease.
More information about the conference programme coming soon!
Stay tuned!
