The Conference
We invite you to participate in the annual Hybrid Conference“Discovering the Path to Breathless Breath“, on Sunday, December 1, 2024, 9.30am. The Conference is organised by the Panhellenic Cystic Fibrosis Association in the framework of the European Cystic Fibrosis Week (18-24 November).
The Stanley Hotel, Odysseos 1, Athens 104 37
The conference is open to patients, caregivers, health professionals and the general public, with FREE ADMISSION. It will be possible to follow the conference via live streaming in Greek and English.
Renowned scientists and health professionals will inform the public about Cystic Fibrosis and lung transplantation. During the conference, will be distributed free of charge to patients and health professionals the new book “Nutrition of Children with Cystic Fibrosis” by pediatrician Anastasia Gambetta. A useful guide for health professionals, educators and the general public, which aims to fill the gap in information about Cystic Fibrosis and the importance of nutrition in the disease.
*A certificate of attendance will be given to the participants at the end of the Conference.
Register now:
Program
9:30 – 11:00 (EET) OPENING – GREETINGS
Adonis Georgiades, Minister of Health *
Lilian Venetia Vildiridis, Secretary General of Health Services
Evangelos Manolopoulos, President of the National Medicines Agency (NDA) *
Theano Karpodini, Administrator of EOPYY *
Hara Kani, Head of the EOPYY Pharmaceuticals Division
Virginie Bros Facer, CEO Eurordis-Rare Diseases Europe
Hilde de Keyser, CEO Cystic Fibrosis Europe
Prof. Lutz Nährlich, Representative of the European Cystic Fibrosis Registry ECFSPR
Vasiliki-Rafaela Vakuftsi, President of the Greek Patients’ Association
Antonis Papadimitriou, President of the Onassis Foundation
Georgios Papatheodoridis, President of the National Transplantation Organisation
Ioannis Boletis, President of the Onassis Heart Surgery Centre
Christina Kanaka-Gantenbein, President of the Institute of Child Health
Maria Tzeti, Head of Cystic Fibrosis, Laboratory of Medical Genetics, University of Athens, Greece
Dimitris Zographopoulos, Data Protection Officer, Ministry of Health
Panagiota Mitrou, Head of the Department of Therapeutic Protocols and Registries of the Ministry of Health
Ioannis Chanakas, Scientific Officer of the Ministry of Health Hospital at Home
Charalambos Moschos, Representative of the Hellenic Lung Society
Alexandros Rodolakis, President of the Hellenic Society of Obstetrics and Gynaecology
Stamatoula Tsikrika, President of the Hellenic Lung Association
11:00 – 12:30 (EET) CYSTIC FIBROSIS IN CHILDREN
The new face of Cystic Fibrosis: hopes and concerns
Chatziagorou Elpida, Professor of Pediatrics – Pediatric Pediatric Pulmonology, University of Thessaloniki, Head of the Cystic Fibrosis Unit, General Hospital “Hippocrates”
Modern treatment and holistic care of children with CF
Petrochilou Argyri, Pediatrician – Pediatric Pulmonologist, Attending Nurse A’, Cystic Fibrosis Department, Aghia Sophia Children’s Hospital
New approaches in the management of complications in the digestive system of patients
Fotoulaki Maria, Professor of Pediatric Gastroenterology, Aristotle University of Thessaloniki, Director of Pediatric Gastroenterology, Hepatology and Nutrition, General Hospital “G. Papageorgiou”
Transition of adolescents with C.I. from pediatrics to adult care: new data
Paraskakis Emmanuel, President of the Hellenic Paediatric Pulmonology Society, Ann. Professor of Pediatrics, University of Crete, Head of the Cystic Fibrosis Clinic for Children, University General Hospital of Heraklion, Crete (PEPAGNI)
Nutritional interventions in patients with pancreatic insufficiency
Katsagoni Christina, MSc, PhD, Clinical Dietitian-Dietitian, Aghia Sophia Children’s Hospital, Scientific Associate of Harokopio University
Newer data on the nutrition of children with Cystic Fibrosis
Gambeta Anastasia, MD, PhD, MSc, MD, PhD, MSc – Applied Nutrition and Health Promotion
