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September 25, 2023 CHMP positive opinion for Kaftrio/Kalydeco in CF children 2-5 y.o.European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive...
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July 20, 2023 Rare Barometer- Eurordis: survey on newborn screening for rare diseases until the 23rd of JulyUntil Sunday 23 July, the Rare Barometer survey of the European Rare Diseases Organisation EURORDIS...
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July 17, 2023 July’s Online Coffee Break – Wednesday 19/7 at 20.00 pmDear members, We are pleased to welcome you to our last summer online coffee break...
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July 17, 2023 Coordination of the President of our Association at the conference “Health financing: Challenges and solutions for a sustainable system”Moderator of the second session of the workshop "Health financing: Challenges and Solutions for a...
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July 14, 2023 Positive are the results of the 2nd cycle of psychological support groupsThe results of the second cycle of the programme of psychological support groups for patients...
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July 12, 2023 The President of our Association at the 1st Board of EURORDIS- Rare Diseases EuropeThe President of the Hellenic Cystic Fibrosis Association, Anna Spinou, participated in the 1st Board...
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June 27, 2023 Meeting with doctors of the Cystic Fibrosis Clinic of Larissa General HospitalThe representatives of our Association, Anna Spinou (President), Konstantina Giannaki (General Secretary), Maro Gounari (Director)...
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June 17, 2023 46th ECFS conference in ViennaThe team of HCFA Anna Spinou (President), Irene Katsini (Vice President), Konstantina Giannaki (General Secretary)...
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May 26, 2023 Annual Ordinary General Meeting 2023Dear members, We would like to inform you that the Annual General Assembly of the...
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May 25, 2023 Happy Birthday to the Hellenic Cystic Fibrosis AssociationToday Cystic Fibrosis patients celebrate!We are celebrating the 40th birthday of our Association, one of...
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