HYBRID 2023 HCFA-TEAM November 14, 2023

Hybrid Conference 2023 “Cystic Fibrosis: Preparing for the future”

The new developments, which change the future of Cystic Fibrosis and gradually transform it from a fatal child disease into an adult chronic disease, were presented in the Conference “Cystic Fibrosis: Preparing for the future”, organized by the Hellenic Cystic Fibrosis Association, on Sunday, December 3, 2023, at INNOVATHENS of Technopolis City of Athens. The conference was held on the occasion of the European Cystic Fibrosis Awareness Week, 20-25 November 2023 and of HCFA’s 40th anniversary, under the Patronage of Municipality of Athens, Eurordis-Rare Diseases Europe and Cystic Fibrosis Europe and with support of Vertex Pharmaceuticals- Platinum Sponsor and Donors Special Therapeutics, PARI, Askpharma

On the occasion of HCFA’s 40th anniversary, the  Association presented its work that changed CF in Greece, the achievements and goals of HCFA and awarded the retired pediatrician, Dr. Adam Georgios, for his outstanding contribution to the establishement of HCFA in 1983. Dueing the conference the presentation of the first interactive children’s book for Cystic Fibrosis in Greece was held. “Secret Mission: C.F.”, is a new project of HCFA for young CF patients and their caregivers. More info for the book HERE.

The Conference began with warm welcome talks of Greek Minister of Health, Mihalis Xrisoxoidis, CEO of Eurordis-Rare Diseases Europe, Yann Le Cam, President of EOPYY, Theano Karpodini, President of Institute of Child Health, Christina Kanaka- Gantenbein, DPO of Greek Ministry of Health, Dimitris Zografopoulos, Working group’s scientific coordinator of “Hospital at Home”, Greek Ministry of Health, Ioannis Tsanakas, President of Hellenic Pulmonary Society, Stylianos Loukidis and President of Hellenic Pediatric Respiratory Society, Emmanouil Paraskakis. The agenda of the conference included interesting presentations from CF centers’ clinicians and health scientists, who informed us about: treatments- therapies for CF, impact of innovative treatments and changes in symptomatic disease management, aspergillus-related lung disease in CF, new antibiotics for CF, sleep disorders, lung transplants in Greece, follow up and complications of transplant CF patients, CF Related Diabetes, fertility and pregnancy, respiratory physiotherapy & exercise, group cognitive behavioral psychotherapy project and testimonials of group therapy participants, CF patients and caregivers. 

Introduction- Welcome talks
Session A’ Cystic Fibrosis today and tomorrow
Session B’ Lung transplants in CF
Session C’ Special topics
Session C’ Group therapy project
Session D’ 40 years HCFA
Session D’ Children's book "Secret Mission: CF"
The Agenda
Speakers
Under the Patronage of
Platinum Sponsor
Donors