Our News
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September 25, 2023 CHMP positive opinion for Kaftrio/Kalydeco in CF children 2-5 y.o.European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for the...
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September 14, 2023 Συναυλία για την Κυστική Ίνωση “Απεριόριστη Ανάσα- Be a life donor”HCFA organises a live music event of free entry with the music band "48 Ores" for raising awareness...
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September 7, 2023 8th of September, Worldwide Cystic Fibrosis Day “Breath Unlimited – Be a life donor”"Unlimited Breath" is the claim of Cystic Fibrosis patients on this year's World Cystic Fibrosis Day and they...
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August 2, 2023 Happy summer with Unlimited BreathThe Ηellenic Cystic Fibrosis Association wishes you a happy summer holiday full of rest! See you again in...
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July 20, 2023 Rare Barometer- Eurordis: survey on newborn screening for rare diseases until the 23rd of JulyUntil Sunday 23 July, the Rare Barometer survey of the European Rare Diseases Organisation EURORDIS - European Rare...
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July 17, 2023 July’s Online Coffee Break – Wednesday 19/7 at 20.00 pmDear members, We are pleased to welcome you to our last summer online coffee break on Wednesday 19/7...
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July 17, 2023 Coordination of the President of our Association at the conference “Health financing: Challenges and solutions for a sustainable system”Moderator of the second session of the workshop "Health financing: Challenges and Solutions for a Sustainable System" of...
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July 14, 2023 Positive are the results of the 2nd cycle of psychological support groupsThe results of the second cycle of the programme of psychological support groups for patients with Cystic Fibrosis...
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July 12, 2023 The President of our Association at the 1st Board of EURORDIS- Rare Diseases EuropeThe President of the Hellenic Cystic Fibrosis Association, Anna Spinou, participated in the 1st Board of the European...
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June 27, 2023 Meeting with doctors of the Cystic Fibrosis Clinic of Larissa General HospitalThe representatives of our Association, Anna Spinou (President), Konstantina Giannaki (General Secretary), Maro Gounari (Director) and Yannis Spinos...
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June 17, 2023 46th ECFS conference in ViennaThe team of HCFA Anna Spinou (President), Irene Katsini (Vice President), Konstantina Giannaki (General Secretary) represented once more...
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June 5, 2023 The President of HCFA is now a new Board Member in EurordisThe President of the Hellenic Cystic Fibrosis Association and Board Member of the Rare Patients Association of Greece,...
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May 26, 2023 Annual Ordinary General Meeting 2023Dear members, We would like to inform you that the Annual General Assembly of the Panhellenic Cystic Fibrosis...
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May 25, 2023 Happy Birthday to the Hellenic Cystic Fibrosis AssociationToday Cystic Fibrosis patients celebrate!We are celebrating the 40th birthday of our Association, one of the oldest patient...
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May 23, 2023 Meeting with the President of the Onasseio Heart Surgery Center for Lung TransplantsA scheduled meeting with the President of the Onassis Cardiac Surgery Center, Professor Mr. Boleti Ioannis, was held...
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May 22, 2023 May’s Online Coffee Break – Wednesday 24/5 at 21.00pmDear members,We are pleased to welcome you to our monthly online coffee break on Wednesday 24/5 at 21.00pm....
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April 28, 2023 Interview of HCFA’s President Anna Spinou on Opinion HealthThe President of the Hellenic Cystic Fibrosis Association, Anna Spinou, spoke to Opinion Health about the launch of...
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April 21, 2023 The Hellenic Cystic Fibrosis Association at the 1st Athens Civil Society FestivalThe Hellenic Cystic Fibrosis Association participates in the first Athens Civil Society Festival organized by the Municipality of...
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April 4, 2023 Free newborn screening for Cystic Fibrosis!On 31 March, the Ministry of Health and the Ministry of Finance and the Ministry of Finance signed...
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April 3, 2023 2nd Hellenic Conference EPNELThe second Hellenic Congress of the Hellenic Lung Association in collaboration with the Working Groups of the Hellenic...
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April 1, 2023 The first meetings of the psychological support groups start todayThose of our members who have registered and completed the questionnaires, to join a group, just click on...
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March 31, 2023 The request for the recruitment of a second pneumologist at the C.F. Papanikolaou Centre in Thessaloniki was grantedWe are pleased to announce that our Association's request for the strengthening of the Adult Cystic Fibrosis Centre...
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March 30, 2023 Speech of the President of the Association, Anna Spinou, at the anniversary event of the E.O.P.Y.Y.The anniversary event of EOPYY held on the occasion of 10 years of operation of the organization, which...
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March 17, 2023 Conference “Greek Solid Organ Transplantation Programs”Our General Manager Maro Gounari represented the Ηellenic Cystic Fibrosis Association at the conference "Greek Solid Organ Transplantation...
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February 22, 2023 Onassis Health Day 2023Our Association's representatives Anna Spinou (President) and Maro Gounari (General Manager) represented patients with Cystic Fibrosis at the...
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December 23, 2022 Article in the newspaper TO VIMA “Breath of life for patients with cystic fibrosis”19th of December 2022 Article in the newspaper TO VIMA "Breath of life for patients with cystic...
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December 23, 2022 Cooperation of the Hellenic Cystic Fibrosis Association with Make-A-Wish Greece20th of December 2022 Cooperation of the Hellenic Cystic Fibrosis Association with Make-A-Wish Greece Make-A-Wish Greece supports children...
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December 1, 2022 Teleworking in the public sector for Cystic Fibrosis patients31th October 2022 Teleworking in the public sector for Cystic Fibrosis patients The Joint Ministerial Decision...
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November 25, 2022 European CF Awareness Week- Webinar “The changing face of Cystic Fibrosis”25/11/2022 “The changing face of Cystic Fibrosis” Webinar of Hellenic Cystic Fibrosis Association European CF Awareness Week (21-27th...
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November 14, 2022 European CF Awareness Week- “Running for Cystic Fibrosis”European Cystic Fibrosis Week "Running for Cystic Fibrosis" CF team in the 39th Authentic Athens Marathon To raise...
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June 16, 2022 Promising news for long-term benefits of innovative treatments in Cystic Fibrosis & new clinical studies on rare mutationsPromising news for long-term benefits of innovative treatments in Cystic Fibrosis & new clinical studies on rare mutationsVery...
