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July 20, 2023 Rare Barometer- Eurordis: survey on newborn screening for rare diseases until the 23rd of JulyUntil Sunday 23 July, the Rare Barometer survey of the European Rare Diseases Organisation EURORDIS - European Rare...
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July 17, 2023 July’s Online Coffee Break – Wednesday 19/7 at 20.00 pmDear members, We are pleased to welcome you to our last summer online coffee break on Wednesday 19/7...
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July 17, 2023 Coordination of the President of our Association at the conference “Health financing: Challenges and solutions for a sustainable system”Moderator of the second session of the workshop "Health financing: Challenges and Solutions for a Sustainable System" of...
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July 14, 2023 Positive are the results of the 2nd cycle of psychological support groupsThe results of the second cycle of the programme of psychological support groups for patients with Cystic Fibrosis...
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July 12, 2023 The President of our Association at the 1st Board of EURORDIS- Rare Diseases EuropeThe President of the Hellenic Cystic Fibrosis Association, Anna Spinou, participated in the 1st Board of the European...
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June 27, 2023 Larissa General Hospital 20/6/2023An online meeting with the doctors, Ms Karetsi Eleni and Ms Perlepe Faye, responsible for the adult Cystic...
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June 27, 2023 Meeting with doctors of the Cystic Fibrosis Clinic of Larissa General HospitalThe representatives of our Association, Anna Spinou (President), Konstantina Giannaki (General Secretary), Maro Gounari (Director) and Yannis Spinos...
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June 25, 2023 Coordination of the Conference “Health Financing: Challenges and solutions for a sustainable system”Moderator of the second session of the workshop “Health financing: Challenges and Solutions for a Sustainable System” of...
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May 20, 2023 Meeting with the President of the Onasseio Hospital for the National Lung Transplant ProgrammeA scheduled meeting with the President of the Onasseio Cardiac Surgery Center, Professor Mr. Boleti Ioannis, was held...
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April 21, 2023 The Hellenic Cystic Fibrosis Association at the 1st Athens Civil Society FestivalThe Hellenic Cystic Fibrosis Association participates in the first Athens Civil Society Festival organized by the Municipality of...
