Who we are HCFA-TEAM February 15, 2023

Who we are

Hellenic Cystic Fibrosis Association (H.C.F.A.) is a non-profit patient association established in 1983 in Athens. Its purpose is the protection and welfare of Cystic Fibrosis patients and their families throughout Greece. 

H.C.F.A. is one of the oldest Greek patient associations in Greece. It was founded 40 years ago by parents of children suffering from Cystic Fibrosis, as in the ’80s, life expectancy was very low, and only a small number of patients (around 25%) managed to survive to adulthood.

During 40 years of actions Hellenic Cystic Fibrosis Association has managed to change the disease in Greece through the teamwork of all its members, improving the quality of life of patients and ensuring their active participation in decisions and actions related to their health and rights.

The Association is a founder member of the Greek Patients’ Association and Rare Diseases Greece and representative of Greece in the international and European organizations.

Board Members
Anna Spinou
Irene Katsini
Vice president
Konstantina Giannaki
General Secretary
Konstantina Progka
Maria Paliou
Deputy Secretary
Christos Bakodimos
Deputy Treasurer
Roula Tzonou-Moutsiou
Our Team
Maro Gounari
General Director
Ioanna Mantzana
Head Secretary
Stavroula Rakitzi
Psychologist – Volunteer
Dionysis Chionis
Legal Advisor
Scientific Committee

H.C.F.A. is supported by a Scientific Committee, including doctors and health scientists specialized in Cystic Fibrosis from all Greek CF Centers. 

Its mission is to support and advise the HCFA’s Board of Directors on medical and related issues to be able to better advocate for CF patients.